Baldemia Partners with the CFTechnology Non-Profit Foundation

 

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Baldemia is helping the triage of CF community servicing companies and foundations in building new initiatives in 2015 that will improve quality of life and health outcomes for people and families dealing with cystic fibrosis. Here is a glimpse of our planned activities for the CFTechnology Foundation in 2015. Chris Baldwin (CEO at Baldemia) is the acting CEO of CysticFibrosis.com, Medrise and the CFTechnology Foundation (See History).

The CFTechnology Foundation (CFTechnology.org), a 501(c)3 non-­profit foundation is working with a consortium of mHealth companies to get technology into the hands of people with cystic fibrosis to capture as much real-time biometric, behavioral, attitudinal, demographic, environmental, historic and genetic information as possible. The technology will provide tools for personal mastery of care management routines and the achievement of goals for daily living. The data can be collected using the latest wifi-enabled devices, in-home sensors and voice-enabled applications. The information can connect the universe of caregivers, and be merged with existing medical and profile information so that on-going big data analyses can generate insights that will lead to a better understanding of the condition, better treatment protocols for managing it, more timely and appropriate care delivery, and ultimately better health outcomes.

For a summary of what the different entities do and our value proposition, you can visit our collaboration presentation here.

Baldemia Brokers Domain Name AthleticTraining.com

Medrise_LogoIn an exclusive partnership with Medrise, Baldemia has successfully brokered the domain name AthleticTraining.com for an undisclosed amount. Proceeds from this sale will go towards improving support for the cystic fibrosis community at CysticFibrosis.com. Baldemia would like to thank all parties involved in the successful transaction and wishes the new owners success in leveraging this incredible category defining domain name.

Baldemia launches EV06 Trial Website and Database

Screen Shot 2014-12-27 at 7.26.27 AMThe EV06 trial is a phase I double blind placebo-controlled clinical trial to evaluate the safety and immunogenicity of the combination of DNA-HIVPT123 and AIDSVAX®B/E in HIV-1-uninfected adult participants with or without underlying Schistosoma mansoni infection.

Baldemia has agreed to help EuroVacc.org in its mission as a non-profit organization dedicated to the development of a safe and effective HIV vaccine through promoting and fostering collaborations with world leading HIV Vaccine researchers and developers in both public and private sectors.

EV06 Trial website was recently launched at www.ev06.org and will be a place the the EV06 trial members to collaborate.

Baldemia Launches new CysticFibrosis.com Website

CF_logoBaldemia has developed and launched the new CysticFibrosis.com website in an effort to better support the cystic fibrosis community. The website aims to nurturing the largest global cystic fibrosis (cf) community comprised of patients, caregivers, families, healthcare professionals, industry leaders and other stakeholders.

The CysticFibrosis.com community website attracts over two million page views per year and hold over one million searchable messages, ninety thousand discussion threads and six thousand patient and caregiver blog posts.

Through empathy and humor, members began sharing ideas for adherence in 1996 – finding ways to motivate themselves and improve their complex and time-­‐consuming health care regimen. CysticFibrosis.com became a hub in part because people with cystic fibrosis are quarantined from each other for fear of transfer of deadly bacterial lung infections. And because the treatment protocol for cystic fibrosis is arduous, complex, and time consuming – the patients and families gained valuable support, education and hope from each other, complimenting their relationships with medical and mental health professionals.

Over the past eighteen years, e-­‐Patients (patients, family members and caregivers) on CysticFibrosis.com have become defined stakeholders along with industry and health care providers. CysticFibrosis.com now has over 16,000 registered members who have volunteered their demographics, with over 4,000 volunteering their genetic mutations. They represent 122 countries and together form the largest globally recognized online community for cystic fibrosis.

The CysticFibrosis.com community also extends deep into the social-­‐sphere, with over 20,000 followers on Facebook and 2,200 followers on Twitter. The CysticFibrosis.com newsletter goes out to over 13,200 subscribers of which 9,000 have chosen to receive daily updates on the latest discussions in the community forums.

Baldemia is proud to be supporting the cystic fibrosis community in an effort to improve the quality of life for people and families dealing with the disease and promoting sustainable collaborations between the patient/caregiver community and industry stakeholders to achieve participatory medicine and healthcare.

Baldemia Brokers Domain Name Physiatry.com

Medrise_LogoIn an exclusive partnership with Medrise, Baldemia has successfully brokered the domain name Physiatry.com for an undisclosed amount to Health Plus Management, LLC. Proceeds from the sale of Physiatry.com will go towards improving support for the cystic fibrosis community. Baldemia would like to thank all parties involved in the successful transaction and wishes the new owners success in leveraging this incredible category defining domain name.

Baldemia Brokers Domain Name Osteopath.com

Medrise_LogoIn an exclusive partnership with Medrise, Baldemia has successfully brokers the domain name osteopath.com for an undisclosed amount to a third party. The funds from the sale will be used to further support the cystic fibrosis community and grow educational offerings for the community through the launch of a new website and new educational partnerships which will be launched in 2015. Baldemia thanks all parties involved in this successful transaction and wishes the new owners much success with the incredible category defining domain name.

Baldemia Brokers Domain Name Hydrotherapy.com

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In an exclusive partnership with Medrise, Baldemia has successfully brokers the domain name Hydrotherapy.com for an undisclosed amount to a third party. The funds from the sale will be used to further support the cystic fibrosis community and grow educational offerings for the community through the launch of a new website and new educational partnerships which will be launched in 2015. Baldemia thanks all parties involved in this successful transaction and wishes the new owners much success with this incredible category defining domain name.

Baldemia Brokers Domain Name Criminologist.com

Medrise_LogoIn an exclusive partnership with Medrise, Baldemia has successfully brokers the domain name Criminologist.com for an undisclosed amount to a third party. The funds from the sale will be used to further support the cystic fibrosis community and grow educational offerings for the community through the launch of a new website and new educational partnerships which will be launched in 2015. Baldemia thanks all parties involved in this successful transaction and wishes the new owners much success with this incredible category defining domain name.

Baldemia Brokers Domain Name SwedishMassage.com

Medrise_LogoIn an exclusive partnership with Medrise, Baldemia has successfully brokers the domain name SwedishMassage.com for an undisclosed amount to a third party. The funds from the sale will be used to further support the cystic fibrosis community and grow educational offerings for the community through the launch of a new website and new educational partnerships which will be launched in 2015. Baldemia thanks all parties involved in this successful transaction and wishes the new owners much success with this incredible category defining domain name.